Access to Cascade Genetic Testing study
You are being invited to take part in the Access to Cascade Genetic Testing (ACGT) research study to be carried out at St. James’ Hospital in partnership with Trinity College Dublin by Assistant Professor Rosie O’ Shea, Principal Genetic Counsellor and Professor Karen Cadoo, Consultant Oncologist and Cancer Geneticist and Clinical Lead, Cancer Genetics Service.
For detailed information to consider enrolling in the study please review the information leaflet below.
Information about the study
Before you decide whether or not you wish to take part, you should read the information provided in the leaflet carefully and, you can discuss it with your family, friends or GP (doctor). Take time to ask questions – don’t feel rushed or pressured to make a quick decision.
You should clearly understand the risks and benefits of taking part in this study so that you can make a decision that is right for you. This process is known as ‘Informed Consent’.
You do not have to take part in this study. If you decide not to take part, it won’t affect your future medical care.
You can change your mind about taking part in the study any time you like. Even if the study has started, you can still opt out. You don’t have to give us a reason. If you do opt out, rest assured it won’t affect the quality of treatment you get in the future.
If you wish to opt out or have any questions, please contact Rosie O’ Shea, Principal Genetic Counsellor by phone at +353 1-4103759 or via email at rososhea@stjames.ie.
How it works
Review information and complete consent to enroll in study
Complete medical, family history & psychological well being questionnaire
Complete education module, knowledge and acceptability questions
Make a decision about genetic testing and complete the consent if proceeding with the test
Receive kit, obtain sample and return kit
Attend post-test genetic counselling session with a genetic counsellor
The Research Partners
