Book Now - Danon Disease Program

Book your genetic counselling appointment as part of the Sano Danon Disease Program. Your genetic counsellor will help you understand your personal and family history, what genetic testing involves, and what your next steps could be.

Natural History Study

I am interested in learning more about the Natural History Study before deciding whether to enroll

I have a personal or family history of Danon disease and want to understand this pathway

I want to understand what genetic testing for the Natural History Study involves

I want to discuss how my results would be shared with me and my care team

Gene Therapy Trial

I have been diagnosed with, or am suspected to have, Danon disease and want to explore the Gene Therapy Trial

I want to understand the genetic testing required as part of trial screening

I have questions about how my test results may relate to trial eligibility

I want to discuss the testing process and what to expect before moving forward

Gene Therapy Trial, Extended Testing

I have already had initial genetic testing and have been asked to complete extended testing

My care team or the trial team has recommended further testing to confirm my eligibility

I want to understand what extended testing involves and why it's needed

I have questions about how extended testing may affect my participation in the trial

Understanding My Results

I have been notified my results are ready

I want to discuss how my results relate to my eligibility for the Gene Therapy Trial

I want to understand what my results could mean for my family members

I have questions about next steps following my results